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Living With Lupus

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This is a more personal post today.  I've not been able to blog or social media much lately so I thought I'd do a little post to let you all know why.  

I have struggled with my health in the 6 months or so, feeling so tired no matter how much sleep I get (falling asleep whilst typing emails!), experiencing a lot of joint and muscle pain, a lot of discomfort in my digestive system and headaches and migraines.  It has meant it has been very difficult keeping up with my little company and I've found it very frustrating that I couldn't get back to all your lovely customer emails as quickly as I'd like or dispatch products throughout the day as before.  

As you may or may not know, I run the company on my own.  It's a little business, with my Mum helping out packaging products and freelancers helping me when I need graphic design work etc.  I love it that way as I have grown the business slowly and have been involved in all aspects of it.  To be unwell is frustrating on so many levels though and working on my own means there isn't anyone to pick up the slack.

I now have a diagnosis however, so hopefully I shall be back on track soon.  I have a rare auto-immune disease called lupus.  It is one of those diseases that affects people differently and is very hard to diagnose, but now I have the diagnosis I can move forward and I am starting on medication to help.  It basically means that the antibodies in my body attack the healthy parts of me, rather than the unhealthy parts like they are supposed to.  This unnecessary war within me causes the symptoms and will flare up throughout my life and it could flare on a day by day basis, or I may have months without symptoms.  It's an odd one to get my head around! 

I want you all to know that I remain full dedicated to my little shop.  I shall work extra hard when feeling well and have to rest when not, but day-to-day wise I shall always aim to get back to your emails in 24 hours and dispatch your lovely purchases every day as before.  Life is for living and this disease will help me to remember that. 

If you have a family member or suffer from lupus yourself please feel free to get in touch as I'd love to learn more about it and how it affects them/you.

Jo xxx

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